Category Archives: Stargardt Disease

A New Day

After my annual eye checkup at the Dean McGee Eye Institute last week (nothing’s changed), my doctor recommended I see a geneticist for further testing. Because Stargardt’s Disease is just one of many similar vision conditions, they can’t definitively diagnose it without performing genetic testing. Part of me thinks that because there’s no cure or treatment there’s not much point… read entire post

Stargardt Disease

From Wikipedia: “Stargardt disease, or fundus flavimaculatus, is an inherited form of juvenile macular degeneration that causes progressive vision loss usually to the point of legal blindness. The onset of symptoms usually appears between the ages of six and thirty years old (average of about 16–18 years). Several genes are associated with the disorder. Symptoms typically develop by twenty years… read entire post

Macular De What?

“You are definitely the most interesting person I’ve seen all day.” A fun phrase to hear in some situations, an eye exam at the Dean McGee Eye Institute not being one of them. After three hours of tests, scans, and evaluations, the optometrist weakly smiled at me and said, “I wish I had better news for you.” I wish he… read entire post